Lived Experience · Disability Justice · Systemic Dignity
“My rule is simple: the people a change affects should be able to understand it, evaluate it, and shape it. Now I'm fighting for disability equity.”
Living with systemic lupus erythematosus, lupus nephritis, cutaneous lupus, and central nervous system involvement creates a reality where stamina and physical energy are rigorously allocated every single day.
Courtney’s advocacy moves past performative corporate wellness into somatic justice: designing workplace workflows, civic meetings, and creative gatherings that respect human bodies and remove the burden of forced disclosure.
Now fighting to enshrine more inclusive ADA law, rebuilding institutional accessibility from the inside, confronting algorithmic bias, and championing economic independence for anyone carrying a diagnosis.
Courtney's draft ADA policy framework outlines actionable standards for plain-language accessibility, algorithmic transparency, and dignified digital accommodations.
Traditional public assistance programs frequently penalize disabled individuals with archaic $2,000 asset caps, forcing poverty as a condition of receiving healthcare or Medicaid benefits.
New York’s Achieving a Better Life Experience (ABLE) program protects independence by allowing tax-advantaged savings for qualified disability expenses (medical, mobility, assistive technology, personal care) without jeopardizing need-based benefits.
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Contribute directly into Courtney’s NY ABLE account at UgiftABLE.com with zero middleman fees.